Background Information:
Anita Claney is the Executive Director of Alternatives in Housing, Inc. (AIH) which recently completed a two-year study of the housing personal assistance needs of persons living with disabilities in the City of Tucson, Arizona. Combining experience as an Interior Designer with years of volunteer work with persons living with physical disabilities, Ms. Claney has written a thesis that applies a value-centered architectural programming model to environments for persons living with physical disabilities.
Interviewer: Megan Scribner is a freelance editor and has worked on several books including: Teaching with Fire: Poetry That Sustains the Courage to Teach; Living the Questions: Essays Inspired by the Work and Life of Parker J. Palmer; Stories of the Courage to Teach: Honoring the Teacher's Heart; and Navigating the Terrain of Childhood: Guidebook for Meaningful Parenting and Heartfelt Discipline. She has also worked as a researcher, scribe and evaluator of programs.
February 2003
| Scribner | Anita, can you describe your position and the work you’re currently engaged in? |
| Claney | I’m the volunteer executive director for Alternatives in Housing. We’re a 501(c)3 and our mission is to provide affording accessible housing in small intentional communities in conjunction with supportive services for persons with significant physical disabilities. |
| Scribner | So is the housing mixed housing? |
| Claney | We are really in the planning stages. What we’re doing right now is a lot of networking, a lot of cold calling. I feel like a salesperson sometimes. |
| Scribner | It’s always part of the job. |
| Claney | It is. We’re in the planning stages right now and we [received] some federal funding to do a demographic needs assessment of people with physical disabilities living in Tucson. So we’re looking at what are the needs and letting everyone have a voice in what they want in terms of housing and attendent care services. |
| Scribner | So you said you’re the volunteer executive director of this. What brought you to this work? |
| Claney | What did I do prior? I was raising my children and working part-time on and off doing design work. I went back to graduate school and got a masters degree. My thesis applied a value-centered architectural programming model to environments for people with disabilities. I got that masters in 1999. I was a founding member of this nonprofit in 1998 and have been on the board since its inception. We were incorporated in 1998. With very little resources available to this 501(c)3 and with the majority of the board being consumers, people with disabilities, there wasn’t a lot of movement forward just because of all the inherent challenges. Our President of the Board announced that she was moving to North Dakota. It was serendipitous because I wanted to go back to working with people with disabilities. It’s been my service work since I was in the ninth grade and I’m 47. And so not only did I have the educational training, now I had been in service many years on and off with people with disabilities. My husband said, “Well, go for it. This is what you want to do.” So I did it. I submitted a proposal to the board that they hire me as executive director and I’d be a volunteer. So that was accepted and I was really more proud of anything that they accepted my position because I don’t have a physical disability (the President of the Board had always been someone with a disability). That really meant a lot to me. |
| Scribner | You say that you’ve been doing service in this area since ninth grade—where did you start and what brought you to it? |
| Claney | I was raised all over the world, mostly in third world countries, and so I went to boarding school in England. The boarding school that I went to actually had a very strong requirement to a commitment to service. It was just required. It was also drilled into me that I had a lot of advantages that other people didn’t and that there were a lot of ways to be of service in community. And so I was given a list of choices and I happened to start working in a preschool for kids with disabilities. Then that transitioned into a job where I would walk into the village three times a week and take care of a woman with a disability. I did her shopping, made her tea etc. because she was in bed all the time. She had use of her hands but was always in chronic pain. I developed a strong relationship with her for three years. Then in my summers I would come back to the states and I would see the other extreme. I worked in some institutions (it was the period of institutionalization) and I would see eight-year-olds in cages. Then when I was raising my children and they were young, I did little things here and there but I was not that service oriented…you know with raising three children… |
| Scribner | Yes, I know. |
| Claney | So I kind of just left it for a while. I mean, I did things here and there, and then I moved to Tucson ten years ago and in ‘98 got involved with this group, and it’s been just really great. |
| Scribner | That sounds wonderful. When you think back to both the boarding school that you were at that had this kind of required model of giving as well as what you got from your family or community, was there any kind of story or model that they talked about or that you felt was particularly moving or inspiring? |
| Claney | I think that the boarding school was really instrumental in solidifying this in me and it took what was out there [from my grandparents] and solidified it into action. Is that what you’re looking for? |
| Scribner | Yes, exactly. |
| Claney | My father is not American, he’s Irish and my mother is American. So I would come back and spend my summers with my [grandparents.] They lived in South Jersey. My grandmother was a school teacher and my grandfather was a small town banker. I became aware over the summers that every day there’d be fresh vegetables delivered by the Italian farmers. I remember being old enough and asking my grandmother why was this happening. She told me that during the fascism in the 30’s that she and my grandfather had sponsored a lot of families—people who were having difficulties with the fascism and who were being persecuted. They sponsored them and got them out and they moved to South Jersey. South Jersey has a high ethnic Italian population. So this was their way of saying thank you and it went on forever. These farmers would bring these vegetables and then it would be their children who had grown up and were farmers. That really made an impact on me as a child to see that kind of generosity coming back to my grandmother. My grandmother was a very self-deprecating individual. The other thing was that African American people would come to our door. They would show up. They would come in and they would say is Mrs. Townsend in? I would say yes and get my grandmother. Inevitably it would be someone thanking her saying that you’re the reason that I went to college. My grandmother had been raised in a spirit of service. And so she had worked in South Jersey and she had taught in a township that was predominantly Black. This was the early 60’s and she really did way more than teach. I mean, she would talk to me about it and she taught social skills. In those days, I’m being blunt here, she would say they have to learn to get on in the White world and they don’t have these skills and they don’t know what is expected. And other people, too, would come by and thank my grandfather. He had given loans to Black people in a time when Black couldn’t get loans. In those days it was called paying respect, calling on people, to see how they were doing and to thank them even though they’d thanked them before. And so that, of course, made a huge impression on me. |
| Scribner | You had remarkable grandparents. |
| Claney | Yes, I did. And so those things made an impression. Then when you combine that with the fact that I was raised in third world countries, seeing a tremendous amount of poverty with a father that assimilated more so than any other expatriates I knew. With the traveling I did and the exposure with my grandparents, by the time I went to high school and [service] was a requirement, it all kind of came together. |
| Scribner | You mentioned that your grandmother herself was raised in a spirit of service. Was she conscious about that? Would she talk about it? |
| Claney | No, it was just this is what you did. It was just ingrained. She would go to church occasionally. I think she led a very spiritual life but I don’t think it was in terms of a religion per se. So I never really got that sense of it coming from a religious orientation though it may have. I think it was more that her father was living on a trust fund. Her father had moved to Texas and bought a ranch and basically was kind of a gentleman. I think that there was a strong liberal bent to an awareness of what they had and what other people didn’t have and that they had the resources to help in their own ways. And then my great-grandmother, who was my grandmother’s mother, she was the local town psychic. So there’s a little vein of not being too conventional. |
| Scribner | That’s kind of fun. |
| Claney | Well, my grandmother used to say it was a riot because everybody in town would see her but it was a conservative small Texas town in the hill country north of Austin and she said everybody would come see her through the back door. So nobody would ever openly talk about it, but everybody saw her. |
| Scribner | Everybody came to her but nobody wanted to admit it. |
| Claney | I remember talking to my husband about it a while ago. I said, you know, she probably was just the town therapist in a day when there weren’t therapists and other people traditionally took those roles, like the doctor. |
| Scribner | What a great story. When you think about with your own kids and future generations, whether related to you or not, do you see ways to pass this spirit of giving on as your grandparents passed this to you? |
| Claney | It’s a great question. That’s a really great question because my husband and I made a conscious decision—though I had a lot of questioning and kind of ambivalence about it—that we were not going to raise our children in any particular religious faith. I appreciate the spirit of service in religious faiths. In my spiritual life and practice, there is a lot of spirit of service involved. So it was a really difficult decision and I wondered what would be the consequences of such a decision. I didn’t talk to my kids that much about my grandparents or about my life overseas—just a little bit. We just lived our lives. Then the most remarkable thing was—my oldest daughter who is not very outgoing—was a ballet student all through high school and never did any service work. It was just ballet seven days a week. She was going to be a professional ballerina. Then instead she decided she wanted to go to college and so she scrambled to take AP courses and get into a good school. Then at the end of her freshman year her aunt was living in South Africa and she went and worked in a township in South Africa. It totally amazed me because I have never pushed my children or wanted them to be in service. I’ve never had an agenda. I’ve always given them unconditional love and support saying: if this is what you want to do, go for it, even though sometimes I felt differently about some of their decisions. Then she started working with kids in East St. Louis. And then my middle daughter was in ninth grade saving up her money to buy purses, very materialistically oriented, very into clothes, very into fashion, very social. Then in the fall of her junior year, she came home one day and she was going on and on about some program called Amigos de las Americas. I wasn’t really listening to her because she had a lot of ideas and always going on about something, so it was kind of in one ear and out the other. A few weeks later she said we have our interview, and I said what interview? She said for this program—I’m going to work in Central America. She went through this process and got accepted and spent a whole year in training and then lived in a village for two months in the Dominican Republic with no running water and electricity. She worked on a youth initiative project which she was a real advocate for. It’s not needs based in the sense you go in and we need to build this—it’s more that she worked with the youth, asking [them] what do you want, having them do the planning. She loved it. What’s amazing to me is that I never forced my views on them, so what I came to realize was that energy was in our house, the energy of compassion and giving. There must have been many ways that my children saw it that I wasn’t even aware of and it has been absorbed into their lives. Now they’re doing it without any kind of pressure—it’s truly amazing. People that know my kids say this is amazing because they know that I didn’t raise them saying we need to go down and work at the food bank every Saturday. There was none of that. |
| Scribner | Just a little more subtle modeling somewhere along that line or spirit that opened it. |
| Claney | I think spirit. |
| Scribner | They’re wonderful stories. It’s so nice to know that it can work that way as well. |
| Claney | Well yes, and to have the faith that it can work that way. I was really surprised because there were times they would come home and ask why weren’t they Jewish or why weren’t they Christian. And I said well, your heritage is a Christian heritage and if you want to go to church, let me know and I can arrange it and we can talk about it. I think that there’s an openness that if they want to take that path in their life they can. |
| Scribner | When you think about what—both for yourself and maybe thinking about your daughters—when you think about the times where you stepped out to give or even receive a generous act, were there conditions at hand that make this moment happen? Is there a strength you feel like you tap into at those times or a spirit that you feel comes at hand when you step into a moment, like when you decided with your husband that this was the place for you to be? |
| Claney | Yes, there definitely is. What happened was I was in graduate school—this is kind of an involved story, but it will lay the groundwork for it. I had some surgery that didn’t go well and I developed chronic fatigue syndrome and fibromyalgia. At the time that I developed it, I’d done all my course work. I just had to write my thesis. I’d done a couple years of reading and research on my own about disabilities and the social political models and the psychology and just a lot of things that I was interested in instead of writing my thesis. And then I got this illness and I was in bed for six months and didn’t know what I had. It was a really, really challenging time of my life and for my family and my children. I took a great approach. I was in therapy. I used a lot of holistic methods to heal myself and I got better which my therapist said she’d never seen anybody get better as quickly. It took about four years. But my health was at a point where I still couldn’t exercise, I couldn’t do anything, and so something just came to me intuitively to study yoga. This was three and a half years ago. My therapist recommended a teacher and I started studying privately with her with no expectations or attachments. Just to try and get my health back. It took six months for me to even be able to bend over and touch my toes because my muscles had atrophied so much. So what happened was in doing this yoga with her, I came to see that through her practice, the lineage that she was teaching me involved a lot of meditation and breath work and posture work. And then I started noticing things changing in my life, that I was a different person. I’d been in therapy but this was different. The therapy was really helpful. It really helped me with a lot of my personal issues, but this was different. I was aware of being guided more by my spirit. And so it became, without my expecting anything, a spiritual practice. In October I went away and I studied the Bhagavad Gita. It brought me into a relationship with God that I had never had, a devotional practice to God. I feel very strongly that if I hadn’t been practicing this and it hadn’t become a spiritual path for me and I hadn’t begun to develop a relationship with God, there’s no way I could do this work I do now. That when this happened it was total faith and it felt like this was the thing to do. And to be honest with you, there were times during the years of me being on this board people wanted me to be the president of the board and I would say—are you kidding me? There is no way I’m going to do this. This is too overwhelming. There are too many issues. There are too many problems. I was frustrated dealing with a lot of the psychological issues associated with disability. I’m being very blunt here. No way would I do this to myself. I’m just coming out of a chronic illness that has a very definite psychological component to it. I’ve had to deal with that psychological component and I don’t want to go back. Then I did this yoga and it was just like this was the right thing to do. Is this what you’re asking? |
| Scribner | Yes, absolutely. |
| Claney | And so it felt really strong. I think that my practice—I studied the yoga sutras and I go to a monthly study group and have another teacher that I study with—it’s really helped me in terms of doing nonprofit work because it is so challenging. I have found that where it’s really helped me is in my nonattachment to the outcome of my work, that that’s what really enables me to stay in the moment. It’s as the Gita say—finding the inaction within the action. It’s about equanimity and about being in the moment, doing the work. It’s very challenging work, and I think that if I didn’t practice yoga I would have quit by now. |
| Scribner | That’s wonderful because you just answered my next question—what’s the greatest learning you’ve received from this work or from being in the way that you are? It sounds like that’s really what it is, that that’s what you’ve really been learning through this. |
| Claney | Yes, and I think with my daughters—I think we model for them. I think it’s all about modeling, I really do, more so than verbiage it’s that consistency of the modeling. |
| Scribner | What is the legacy of giving and receiving in the world, both directly like you have described from your grandparents to you to your children, but also talking about that spirit that resides in your house, that kind of way of thinking about it. I don’t know if this is too large of a question but do you see a legacy of this kind of giving and receiving in the world? |
| Claney | Yes, I do. I mean, well its part of my spiritual belief because I believe that our thoughts, our consciousness, go out into the world and that it can have a great influence on how people are on the other side of the world. I mean, that’s my belief. I see it happening. For example, this is another story, okay? |
| Scribner | That’s okay. |
| Claney | And I don’t know if this is what you’re getting at, but it just happened recently and it was just amazing to me. My husband and I, we’re very busy people and we have the kids, so we don’t talk about our giving. Tucson is 36 percent Latinos and I’ve been trying to network and make some inroads in the Latino community because I’m really committed to the Latino community being involved in the planning process so that their needs are met by this nonprofit. I had met back in June with a county supervisor who represented a portion of the city that was largely Latino. He told me very straightforward that it would really take three years to get their trust and that I had to do a lot of work to do that and I had to be really consistent. I was really discouraged because I’m a one-person operation. I’m the only staff for this nonprofit and I thought I don’t have the time to devote to building these kinds of relationships. I’m so busy trying to raise money and all of the things that are involved in a nonprofit. So then I kind of let it go. Then we had our survey. A thousand copies of our survey were being translated into Spanish, so now the surveys are at the printers ready for distribution. So again, I tried some of our Latino nonprofits and I didn’t have much luck. And so one day I came home, one night, and I was talking to my husband and I said I’m really frustrated. I don’t know what to do. He says well, call Sister M.T. and I said who’s she? He says she’s the one I work with at Catholic Community Services which in Tucson is one of the main ways that the poor and the really vulnerable are reached in the Latino community. And so I called to make an appointment. She called me back and said she could see me at a certain time. I went to this meeting and we talked and I listened—I think one of the gifts that happen is in the building of relationships. I love to listen to people, I love people, and so I listened a lot in this meeting to her story of how she came to service, how she grew up so poor. My husband also grew up very, very poor. She said I’m so appreciative of the work your husband does. And I’m thinking what work? Because I knew a little bit of it but I didn’t know the details and so I’m going yes, yes . . . And I tell her what we’re doing and I can see her skepticism because she’s dealing with people who don’t have running water and what we’re talking about is a level that’s way above that. Finally at the end of the meeting, we’re just talking and she looks at me and she says you know there’s this group that meets on the south side. It’s a group of women who are really doers and if you want, I’ll put you on the agenda and you can come and talk and bring the surveys. She was being very understated. Then she looked at me and she says well, you know, our new Latino Congressman’s wife is in the group. So [here was] this whole circle of my husband giving and me not really knowing what he was doing and me separately trying to get connected to this community. Then all of a sudden I just happened to mention it to him and he suggested I go talk to her. She made it very clear to me in an understated way that while she’d had 40 phone calls, I was the only one that she returned and it was because I was Frank’s wife and how glad she was to finally meet Frank’s wife. Isn’t that a wonderful legacy? |
| Scribner | That is, that’s beautiful. |
| Claney | It was just amazing. And so now I have this in-road into a very powerful and close networking group. Isn’t that amazing? |
| Scribner | All through both serendipity and that it was there all the time in some ways. |
| Claney | And there was no way—I mean, I just couldn’t find it. So I rely a lot on that in my work, the serendipity, the synchronicity, the faith, the fact that things are just going to somehow fall into place if I keep just doing the work. Is that kind of what you’re talking about? |
| Scribner | Yes, absolutely. These are great stories. I really appreciate hearing them. On the flip side of giving is receiving and sometimes that’s a hard thing for people. Do you have any experience or thoughts about what it means to receive and what it means to not receive, the openness or not openness to that and how that shows up in the world or in your life? |
| Claney | That’s a good question. It’s challenging. It’s hard for me to receive. I think I’ve learned more to receive because of the work I’ve done in therapy. While I was in therapy and starting to think about doing this work back when I picked it for my graduate degree, one of my goals was to be really clear why I was doing the work. To make sure that I wasn’t doing the work to fulfill a need in myself, that it wasn’t motivated by something I needed to sustain my inner life. And I went into it in therapy because a lot of times I have met individuals in nonprofit work who do amazing work but sometimes I’ve seen burnout or emotional exhaustion. I became very clear that I didn’t want that to happen to me and that I really didn’t want to rely on external motivators to do the work, that I really wanted it to be clean. That’s what I call it, internally motivated. So then in that sense receiving doesn’t really come up for me. I think that my husband and I have a great life. We’ve struggled for years and we’ve received a lot. We have these fabulous kids who are just really remarkable. People tell us we have remarkable children. We have material comfort, we’re at a point in our marriage where we’ve worked out a lot of the issues and we’ve managed to stay in love and committed which was the challenge. I look at all that as what I’ve received in my life. I have a lot of gratitude for what I’ve received because it is another reason I can do this work—my life is really good. |
| Scribner | Several times you’ve mentioned the spirit of service and as I said at the beginning of this, this project is called Generosity of Spirit and that’s the term that we’re playing around with some and asking how that comes across to people. |
| Claney | Generosity of service? |
| Scribner | Generosity of spirit. I was just wondering if that phrase has meaning to you. |
| Claney | Oh yes, it has great meaning to me because I think that it’s a very pure phrase and I think it was kind of what I was alluding to. I see spirit as something very internal and that the giving comes from internal motivation. It’s an opening of the heart. I really don’t think I’m being generous, you know? I don’t really see it that way. The president of the board the other day said to me, “You and Frank give so much.” I was taken aback because I never think of it that way. I think of it as my heart opening to the world. I like people. I enjoy them. They frustrate me, I get angry at them, I get discouraged and disappointed, all of those human emotions. But I really have an open heart and I think maybe being raised in all those cultures and so connected on that level with the sameness in all of us on a very, very deep profound level. And then finding yoga and finding my spiritual practice and finding that realization is inherent in the spiritual practice, the divineness in all of us. So if we truly see everyone as being divine and having gifts, then how we interact with them in the world—it’s almost superfluous to say generosity of spirit. Do you know what I mean? |
| Scribner | Yes. |
| Claney | It’s just what happens. I love the phrase. |
| Scribner | What would you most like to see come of a project like this? What do you think would be of value in the world? I talked to you a little bit in the beginning of some of the things that we were thinking about, but I’m just wondering if you had any vision about what you’d like to have happen. |
| Claney | Our nonprofit joined Community Shares. It’s a national organization. It’s a workplace giving campaign. In layman’s terms it’s kind of an alternative to the United Way. Our nonprofit joined it and because I’m an executive director I go to the monthly board meetings. It’s called Community Shares of Southern Arizona. It was the first chance that I had to, because I’m so busy in my own job, be around a group of nonprofits doing very different work. And in hearing some of the stories how motivating it’s been for me and how much I’ve learned from just being connected with the people in this group. And so I think the work you’re doing is truly important because I feel alone a lot of the time. A lot of these nonprofits that come to this table are one people, two people in the office. They’re working at a grass roots level. They’re trying to make changes that I wouldn’t say necessarily are in the really thick established current. And I think that the support, that what you’re doing, what your giving to people could be really remarkable. |
| Scribner | Well, great. Thank you. I’ll take that gift from you. |
| Claney | It’s inspiring to hear people’s stories. It really helps me. It helps me feel part of a larger community which I think is really important. It helps keep me going because it is very draining to give and give and give and give if you don’t replenish yourself and you don’t take care of yourself. |
| Scribner | That was our instinct about this, but it’s nice to hear it because you don’t want to create something that isn’t going to have any meaning and is just going to be one more thing out in the world. |
| Claney | I think it would have tremendous meaning. For me, for example, there’s another disability nonprofit here in town that I interact with. I’m trying to collaborate with the executive director, and when I first started interacting with her she kept saying: why are you doing this? Just quit. (Really, truly this is just an unbelievable struggle. It took me years to get this nonprofit from the red into the black.) I’m very, very grounded and I would just say to her, I just have this intuitive feel that this is needed. We are going to be changing the way people think about how they take care of each other as they age and as they have issues with their health. This model we’re going for is not just for people with disabilities. It’s a different way of living as you get older. I would say that to her and then I would go to these groups and hear these stories and it would be like, “Oh.” |
| Scribner | Right, a little bread for the soul there. |
| Claney | Yes, exactly. And so I think what you’re doing is fabulous and I think people really need that because there’s a lot of discouragement around these tables. It’s hard to get the money and the funding and there’s competition. It can be very hard, so I think that it’s kind of like peer support and mentorship. We all have something to learn from each other. I think I just have a curious nature and I want to learn from other people. I certainly don’t have a fraction of the answers. |
| Scribner | That’s why we all have to work together because none of us do. If you thought about it, just to follow this through a little bit more, in terms of form, there can be newsletters or booklets or books. What kind of form are you drawn to that you might turn to after kind of a depressing day that might help? |
| Claney | Well, for me, I’m 47 so a book would be great. I have a hard time sitting and reading in a chair on the Internet. I like to lie in my bed and read a book. I even think it would be nice to see retreats for people in the nonprofit world and not necessarily retreats that are like legal issues. I go to all these workshops, Legal Issues of Nonprofits and How to Market Your Nonprofit. If it were just more spirit based, I think that would be really great, too. One of my beliefs is that I’m pretty low key about the work that we are doing because I feel that the work that I do is my expression of being human—my humanity projects from the work that I do. I have seen the executive director change being in my presence and be much less negative. She has become much more positive and is really reconnecting with her spirit about the work that she’s doing because she does phenomenal work. |
| Scribner | Yes, that does. Do you think there is any other question that we should be asking? |
| Claney | No, I think you’ve done a great interview. I think the questions are good. I think it’s a really important question in our culture, to really look at what is generosity of spirit, what does it mean to different individuals. It’s going to have different meanings and where does it come from? I think it’s critical to think about for the next generation because I worried as I was raising my kids that because I wasn’t requiring service and because I wasn’t requiring religious education that my kids would not [be involved in service]. And because we had risen to a higher socioeconomic level and I was getting these materialistic kids, I really was concerned about what had I done—but then to see the outcome and realize that they will be in service the rest of their life in some way or another is really wonderful. And I think it’s simple. It would seem so simple now. So I think the work that you’re doing can inspire that in other people. It would be great, wouldn’t it? |
| Scribner | It sure would. It would be feel that this was well worth doing which is always a great feeling, as you know. |
| Claney | I know. It’s worth doing what you’re doing. I think it’s really important. I go back to thinking somebody told me once to always remember that people want the opportunity to be of service. They just don’t know how. They don’t know how, but it’s in everybody because it makes you feel good to be of service. It really does. But sometimes I still don’t know what to do with it—for instance, it’s hard for me to ask for money, but I have that intention sitting there and the thought that someday it’ll bear fruition. It is really great work. |